Saturday, September 28, 2013
Scrolling Vision Issue Solved?
Well, we tried a reduction in the Trileptal, which was at 1800 mgs since Meridell. She is now on 1500 mgs, and guess what? No episodes of scrolling vision!! This has been true for the last four weeks. So maybe the scrolling vision had nothing to do with the concussions! If that is so, then so much of the issues she had in school last year might have been avoided, but we are still more satisfied with the online high school option. And this makes the whole lacrosse/concussion issue look less concerning. Not completely, but a little less. Her moods haven't changed with the reduction either, thank goodness!
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9 comments:
That's great news!
Thank you for your blog. We have just started this journey with our 15 yr. old son.
Megan,
Could you please email me at callyflower@yahoo.com ? I need to discuss something with you.
Thanks,
C
Megan,
Your blog has helped me regarding people I know as well as for school. I want to be a teacher.
Can you tell me about the referral and screening process that you went through?
I see from other notes the diagnosis and history but what kind of evaluations and assessments had to be done to make sure that your child didn't get the wrong diagnosis?
Did you have to do an IEP or IFSP? If you did, what services are you using and who is it by?
What was you and your family greatest challenges/success?
What are your long term goals and wishes for your child?
Lastly, what can I do to be an advocate and help tell your story?
Thank you, Valerie
Just came across your blog today and am so thankful that I did! Although I am very sorry to read about the struggles you and your family have gone through with your daughter, I am glad that you have shared your experiences. I am the mother of 3 girls (ages 17, 14 and 11) and we have been going through hell with the 14 yr old for the last 2 1/2 years. She has been diagnosed (and misdiagnosed!) with many different medical and psychiatric illnesses since then. Currently she is hospitalized (again) in an inpatient psychiatric unit at a children's hospital 4 hours from home. She is being treated for depression, bipolar and a restrictive eating disorder. As a family we are exhausted mentally, physically and emotionally from dealing with her these last 2 1/2 years. We feel very alone in our struggles as we don't personally know anyone here who is dealing with anything similar. When I found your blog and started reading several of your entries it was as if I wrote them myself. Thank you for sharing your stories and experiences to help others like myself so we don't have to feel so alone dealing with this.
Jennifer
Hi,
I discovered your site while searching for information on Meridell and wow, I am so blessed to have walked the last few years with you, via your blog. Thank you for your honesty and for the amazing gift of hope I have. My girl is currently hospitalized here in Seoul, South Korea and we are next on the list for a bed. All too often I have felt that despair, loss of hope, and uncertainty that comes with having a child in crisis. Today, I feel hope. Jeremiah 29:11 has always been a favorite. That you for being part of His plan for my walk today.
Thank you so much for your blog! I am on the verge of tears. It is like I am reading about my own daughter and our family's hopes, struggles, and every other emotion we feel. My daughter is soon to be transferred to Meridell and we are scared and unsure. Fortunately we are here in TX so visiting won't be too much of an obstacle. It is so hard to talk about our daughter's struggles with other people because they simply don't understand. And I appreciate your honesty! I have felt like such a bad mom at times trying to balance my daughter, our two other kids all the while trying to work 8 to 5, keep a clean house and be a wife to my husband. I pray that your family is doing well and again, thank you. It may not seem like much to write your blog, but you truly have inspired others.
Megan,
I would very much like to talk to you face to face, or more like email to email. My daughter was at Meridell last year and it seems we have dealt with many of the same issues. Let me know if you are willing to talk (or have the time or energy
). My email is ncherry123@gmail.com.
Thanks,
Nicole
Wow, I am soooo sorry I didn't read all of these last fall. I was actually going through a very difficult time personally, not with Caroline at all, but just me. You all deserve a reply. Forgive me for my silence. I am returning to this blog now that the fall is in the past. Thank you!!
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