When she was first diagnosed at age 7, she was put on Trileptal, an anti-convulsant that doubles as a mood stabilizer. Then that stopped working after two years and she was put on Depakote, which made her gain five pounds a month. It really didn't work either, so she was switched to Lithium, which she still takes. She needed something else when it became obvious the Lithium wasn't enough, so she was put on Topamax, another mood stabilizer. That petered out after a year, and then she needed an anti-psychotic for visual hallucinations, so they started her on Abilify. That worked for two years, and then stopped working, so during her last hospital stay, they switched her to first Geodon, which didn't work, then Seroquel, which is mostly working, but then she needed a diabetic medication called Metaformin to prevent diabetes because Seroquel can mess with your blood sugar. And Seroquel gives patients severe munchies, so she has put on 10 pounds since early January. In addition, she takes sleep meds because without them she can't stay asleep (Trazadone and Clonazapem) and she takes Benadryl to counteract a nasty side effect of Seroquel called tardive dyskenesia, involuntary and sometimes permanent facial movements, which she had begun to show. We also have her on birth control pills to regulate her hormones because the ups and downs of her cycle were making her moods worse. In the fall her psychiatrist added Lamictal, another mood stabilizer with antidepressive properties because she always tends to be on the low side. Prestiq, an anti-depressant, was also introduced recently because she was so depressed. So, yup, that makes nine medications every day, totaling about 15 pills to swallow in one day. Oh, I left out claritin for allergies.
She HATES taking this many pills, and so do we. The doctors tried to reduce the number of pills she was taking every day during the last hospital stay, but as soon as they would take something out, she would get worse. At this point she takes whatever she needs to keep her life functioning, which, unfortunately, isn't even functioning so well right now. We have been told that Caroline has been unusually difficult to keep chemically stable, so we are also looking at some alternative approaches to help her any way we can (food allergies, etc.). She has endured a lot.
3 comments:
Hey there, niece here.
I've been reading all of your posts and really appreciating the opportunity to feel a little more connected to you guys. I hate that you are all out that and that our family is way over here.
Mom said that you are all coming out here in April for some Grammy and Grandpa time and some Disneyland. I can't wait to see you all, especially "Caroline." I really want to hang out with her while you are out here. Give her my love, and say hi to my awesome Uncle and the girls for me!
Caroline has been through a lot AND SO HAVE YOU my friend! So have you. The emotional energy that you tear through in a day is astonishing. I again will say that I'm so glad you started this blog. You help us to pray for you, sympathize so much more with you, will be able to better know where you are coming from and where you are at when we see you, and be a blessing to you and your family (at least that's my hope) because of it.
I will pray that this time of so much medication will be a thing of the past over time...whether that's the meds improving and/or Caroline improving - even healed.
Bless you dear sister!
I so appreciate my friends and family, large family, that support us so much!
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