Monday, June 8, 2009

A Questioned Diagnosis

I belong to an online support group through the Child and Adolescent Bipolar Foundation.  The moms in this group have been a huge source of information and encouragement to me.  Often, they have been through medication trials that we may be facing and have a lot of anecdotal advice.  Yesterday, one of these moms, who works with a neurosurgeon, emailed that she would caution me about the QEEG and the diagnosis of "cerebral dysrythmia."  She says that in the field of neurology that diagnosis would refer to epilepsy, and that the report we received could be interpreted differently by other doctors, basically stating that the report may not be valid.  So now I am wondering if the doctors at Meridell know what they are doing.  They seem very confident, but now I have this other opinion and I don't know what to think.  Caroline's doctor put her on the amantadine in response to this "abnormal" QEEG.  Yet the amantadine appears to be making a significant difference.  Even if the QEEG is frowned upon as somewhat suspicious, I guess we will just keep her on this new med.  All I know is that she is so much better.  I hope one day that we will be able to really pinpoint in sophisticated brain imaging exactly which meds will be the most beneficial.  Wouldn't that be nice and easy!  Everything regarding the treatment of  early onset bipolar disorder seems to be trial and error, lots of guesswork.  My bipolar adult friends go through the same cycle of trying different med combinations, having it work for a while, and then something changes and the meds stop working, and so something else is added or changed.  Not an easy life at all.

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