I haven't been writing because I have been sick and before that I was super crazy busy from about mid-March. Lacrosse season and soccer season are in full swing, so adding the games and practices to our crazy family schedule has put me behind in everything, including doing our taxes!
Caroline has started back to school, one period added each week. So far the results have been mixed. Some days she has gotten the migraine aura of the visual disturbances, and some days she hasn't, while wearing the special prismatic glasses. I thought this would happen. I have a feeling that we aren't going to see a miraculous "cure" or perfect solution to her sensitivity to florescent lights, or the projectors. Not sure at this point of she will finish out school at the public high school this year. We will see how this week goes. If we don't see major change, we may just have to homeschool the rest of high school. I can't even think about what to do about college yet. One bridge at a time.
She is in heaven with the lacrosse side of things. She is wearing a rugby helmet, the only one on the team who does. So far, no injuries, no collisions. She is making some amazing goals. We are so proud of her! We pray that her season continues concussion-free of course.
For those who have commented recently, please know how encouraged I am when you comment here. I do read them and sometimes I don't have time to reply like I want to. You are blessing to me and I hope this blog is a blessing to you! We are in this together!! For us it has been ten years and God has been so good to bring us stability now for the last four years or so. I believe this kind of stability can be found for your child as well, with lots of trial and error and the right help. It might take years, but I really believe if you keep pursuing and advocating, solutions can be found. Not a cure, not perfection, not even a truly"normal" child, but a much improved quality of life, for your child, and for your family.
I am on Blogger less often these days but I still like to keep up with your family. I am happy your daughter is still going strong! I hope she still flourishes at a university but if not that is what the campus disability services are for.
ReplyDeleteThanks ,In the Pink,. We shall see where life leads Caroline. She is a strong fighter and I think she will succeed.
ReplyDelete